What's your story?
Can I help you? Someitmes we are so used to seeing the negatives that we don't notice when we are...
Read more
Category: Difficulty
Opioids vs. acceptance and commitment therapy
Some patients who take opiates for their pain now experience that medication is much more restrictive.
Read more
Sex and Fibromyalgia
It's best not to start talking about getting intimate again when you are in bed. Doing this can put a lot of pressure on the conversation. Do it on one of those better days, when you haven't had any doctor's appointments or difficult situations to manage and have less pain. Of course, it is difficult to plan when that will come together. It can be liberating for both concerned to talk about their fears, their frustration, their emotions. You might find that once you have found the courage to raise the subject, your partner doesn't want to talk about it. Just starting the conversation with your partner by saying that the symptoms of fibromyalgia make it difficult and you would like their help in finding a way to become intimate that is doable for both, could be an example for a door opener.
Read more
Loneliness
For the first time in humans, it has been shown how both hunger and loneliness share signals in a deep area of the brain. This area determines impulses for reward and motivation. What the researchers found is something we have all been experiencing in our own bodies, in our own souls at different levels for the past year. Rarely has evidence-based explanation been so quickly at hand.
Read more
Fibromyalgia syndrome - what does it feel like?
Sometimes the hardest task for fibromyalgia sufferers is to find out how they can live with it individually. Knowing the understanding and help of those around them can be very helpful.
Read more
Lichen sclerosus - It itches!
You've probably never heard of it. Another rare disease? Not at all. Lichen sclerosus is the most common noncontagious genital disease. You may think it's an STD-- no, it's not. Lichen sclerosus is not caused by an infection - the disease is not contagious, has nothing to do with lack of hygiene and cannot be transmitted by contact, including sexual intercourse.
Read more
Bowel movement Hard and soft facts
Nobody likes to talk about what goes on in the bathroom, or worse, doesn't go on. We are ashamed or embarrassed. Problems with bowel movement - Irritable Bowel Syndrome, are complaints that many fibromyalgia sufferers have to deal with. These complaints have what it takes to make your day thoroughly miserable.
Read more
What you are seeing is not me!
Fibromyalgia is invisible, it does not leave any traces on the skin, does not cause wounds that others can see. It's a lonely, desperate pain.
Read more
Lost Trust
Why am I telling you this? After all it is not something easy to talk about.
Sometimes there are stories that make life difficult for us. It is important to realize this and if possible address them, for our own sakes.
ADHD and fibromyalgia
You cannot concentrate anymore, you can't think straight, you keep forgetting things and just feel out of place. Sound familiar? One study found that fibromyalgia is more common in people with ADHD. The symptoms: difficulty concentrating, forgetfulness, and general cognitive problems are often given little attention when treating fibromyalgia.
Read moreMy mum has fibromyalgia
The author's daughter
The beloved pain scale
I hate this pain scale! It's for healthy people who don't usually feel pain. But if you have constant pain that can feel different and have different effects, how should you categorize it?
Read more
I'm so glad you're here.
